Having trouble finding things to do while in quarantine? Our warriors know all too well what it is like to be stuck at home and are here to help. Here are some of their tips and tricks to surviving a quarantine! HAVE A DAILY ROUTINE Due to COVID-19, many people are...
As a veteran pediatric intensive care nurse, I have been exposed to just about every bacteria and virus known to man. For the last 15 years, I have been caring for critically ill children in the hospital who suffer from acute and chronic illnesses, pre- and...
My issues started @ 14 mos of age with a subdural hematoma leaving me blind in my right eye and a klutz my whole life. Fast forward to 17/18 and depression and anxiety came into play. Fast forward again to 2011 and I had to have a hemilaminectomy on my l5/s1 disc. My...
Hi! My name is Izzy Kornblau, I’m 23, and I have Ehlers-Danlos Syndrome (EDS), postural orthostatic tachycardia syndrome (POTS), and a few other common comorbidities. I experience chronic pain, subluxations/dislocations, dizziness, and abdominal pain, among many other...
Eryn was a bright, sassy girl with a wicked sense of humor who loved pulling pranks. Though her body didn't work the way it should've, her brain was completely normal. She was gifted in school, she was a gifted writer and she loved to read and write fantasy stories....
I've always been a delicate flower, as my family has said. Crying from pain while jumping on the trampoline, breaking dishes while helping mom in the kitchen, and not being able to sit still in church. "She needs a doctor," people would whisper all day. Then, winter...
My angel Warrior Eryn was born with very weak muscles. She spent a lot of time in the hospital as an infant and toddler. This prompted me to become a nurse. I work as both a pediatric and neonatal nurse to help parents like me and children like mine. I gained a new...
August 1996 was when my journey into this world began... I was born a twin. Our arrival was definitely unpredictable. We were born three months early on the day of my mom's twenty-fifth week of pregnancy. My brother, Christian, was born first, and seventeen minutes...
I was 19 when I started to not feel well. I noticed my left rib was swollen and it hurt extremely bad and was so sensitive to the the touch. My dr took some blood work and said my ANA level was high and so I was sent to the U of U hospital. They diagnosed me with...
This blog was originally posted on Daniella's blog in May 2019. She is happy to share this post with all of our Warriors here on the CWC blog. Dear Ella, Sometimes life doesn’t go as planned, most people probably don’t think of 11 year olds even having plans for their...
If you’ve ever had a friend or loved one diagnosed with a chronic illness, then you’ve probably wondered what to do and how to help. Many of us feel helpless in this arena and sometimes end up avoiding them because of it. I asked several teens and young adults how...
At the age of 11 I started to get chest pains when running, within a few weeks I was getting breathless and fatigued from the simplest exertion, just climbing the stars had me flopping onto my bed to rest. As an active child this had me concerned. After explaining...