Before I was even born my quality-of-life seemed low. My parents were told they could abort me because the type of spina bifida I have Is known to be devastating. My parents were told that I wouldn’t be able to walk, they would have to catheterize me long-term and I would have to be saran wrapped while my back was healing because while I was in utero my back was open. There was no evidence or knowledge that my back could close on its own but by some miracle it did. I was born and my back was fully closed with a sack. Even though they said I’d have to be catheterized my whole life I was able to stop after second grade. Along with all of my spinal issues I also had my vision problems which slowly devastated my site. The hydrocephalus was very mild and never required a shunt. The ADHD was never apparent until this year by my therapist. My other mental health issues didn’t arise until 2016 after a traumatic hospital Experience. From 2014 to the end of 2016 I attempted college. I ended up dropping out due to my mental health issues. I tried a second time in the fall of 2018 but that lasted only 2 1/2 weeks. My classical EDS symptoms were not very prevalent or obvious until after my experience in 2016. After that all of my symptoms went into hyper gear. It was since 2016 that I had thought that I had EDS but was only able to find out for sure in December Of 2019. I am now 24, I am blind due to my axenfeld Rieger syndrome and glaucoma. I have many mental health issues and chronic health problems. I attempted and failed college twice. But I still have goals and ambitions. I want to be an actress/voice actress. I am a blind gamer and I want to be an accessibility consulting entrepreneur and create my own company that consults other companies on accessibility and also Create a game developing company that Makes accessible games for those of all types of disabilities. I am a person who wants to own my own house, wants to own my own car, don’t worry I won’t be driving it. Even though I am disabled, have mental health and physical chronic health issues I am still a person with goals and ambitions. It may take me a very long time but I will achieve them. I also plan to get dental implants in the future, the ARS has affected my dental structures, In the way of causing me to have Very few, weird shaped and small teeth. They are tens of thousands of dollars but I know I can achieve that goal and do it on my own for myself. Even when I was born I was beating odds, and I will continue to do so.
EDS
Growing up, my stomach was my biggest problem. I got pneumonia when I was 10 years old, which led my stomach to reject...
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