Every four minutes someone somewhere in the United States is diagnosed with epilepsy, and this is the story of how I became 1 in 26. My name is Robyn, and I’m an epilepsy patient from Maryland, and this is my story. My story begins on the evening of December 30th,...
Hi, my name Adriel and I was born with Cerebral Palsy. This was mainly due to the lack of oxygen I received during the process of my mom giving birth. Doctors diagnose me within my birth year and told my parents I couldn’t walk and would need assistance for...
I began having symptoms in 2006. I randomly began to experience strange symptoms such as vertigo, visual disturbances, nausea and a feeling that something was "off". While at work one day, vertigo hit me with an intensity that I had never experienced before. It was a...
I was first diagnosed with Cerebral Palsy at the age of two years old after weighing 2 lbs. 3 oz. at birth because I decided I wanted to be a summer baby instead of an October baby. Eager to come out in the world and spread my message, I received a birthday gift of my...
Around 2007 I woke up to get ready for school and complained to my mum about a headache, over 10 years later that headache still hasn't gone away; then around 6 months later the migraines started, piling pain onto something that was already draining me at such a young...
Arushi Lohiya Marketing & Branding strategist | Fibromyalgia Warrior | Patient Advocate | Published Poet | Animal lover  Graduated top of my class from Iowa State University, USA in marketing... a national level sports player … managed to combine both my passions...
I started showing symptoms when I was 16yo. I started testing and MRI every year, after 5 years I stopped. When I was 26 I woke up and I could not feel half of my face. It has been a struggle getting the right meds getting everything working. At this point in my life...
Hi, My name is Katie. I am 23 years old. I was born with undiagnosed Spina Bifida until birth. I was born with a tumor-like mass that was a blessing that covered the hole in my spine. This turned out to be a blessing for many reasons the biggest being that it blocked...
Hi am Kins and i am a person with schizophrenia. I started to experience the symptoms when I was in mid 20s. At first, it was difficult to identify because in my country people around me believe in possessed demons or evil spirits. They believe that hearing voices and...
I was diagnosed with CMT and scoliosis when I was 16, I’m now 52. When I was first diagnosed my doctors told me that I would be in a wheelchair by the time I was 21. I decided right then and there that was not going to be the case. Spoiler alert: I am still...
Hi all! My name is Ashley Gregory. I am a 30 year old who lives in Virginia! My mom passed away from breast cancer when I was 15 after a several year long battle. So I decided to dedicate my life to helping others and graduated nursing school in 2014. After that, I...
I've always known I've had hydrocephalus. It's sort of like that big brother's in the room but you never talk about it. It's just there. Never in my life did I imagine that in my teens it would cement itself on center stage & not only demand to be recognized but...