I was diagnosed with CMT and scoliosis when I was 16, I’m now 52. When I was first diagnosed my...
BLog
Warrior Wisdom
Tearable but not rippable
I was diagnosed with 'Crohn's Disease with Crohn's Colitis', a form of Inflammatory Bowel Disease...
I have CMT and I feel beautiful
I was diagnosed with CMT and scoliosis when I was 16, I’m now 52. When I was first diagnosed my...
Tearable but not rippable
I was diagnosed with 'Crohn's Disease with Crohn's Colitis', a form of Inflammatory Bowel Disease...
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When life gives you LEMS, make LEMonade!
Hi all! My name is Ashley Gregory. I am a 30 year old who lives in Virginia! My mom passed away...
It takes one
I have had migraines since I was 6 after a concussion. Af the age of 19 I started having right...
XLH weakens my bones, but not my will!
I was born with X-Linked Hypophosphatemia (XLH), it is a rare genetic disorder that affects about...
Hope is Hard but Support is Key
I started experiencing headaches and body pain at 12. They quickly became chronic and followed by...
Suddenly it Matters
I've always known I've had hydrocephalus. It's sort of like that big brother's in the room but you...
My journey
When I was 10 I started having chronic back and neck pain for which I still don't have a...
Journey to Seeking Serenity and Harmony
I am finally venturing into that dream of being a writer and putting her words out there for the...
Growing Pains
My earliest memories are of pain. That sounds rather dramatic to say, but it's true. I was the kid...
Beating the odds
Before I was even born my quality-of-life seemed low. My parents were told they could abort me...
From Bullied to Beauty
I was bullied from a very young age. On top of that, everything I tried out for, I was told I...
Long Road to Rare
I have had issues since I was a child. I was sick often. As I got older and went to the doctor by...
The Long Road
It was Christmas 1999 when I got bitten by a cat, by January 2000, everything started, the joint...