In April 2017, my boyfriend of six years proposed to me in our apartment and we started to plan our wedding for the next August. Just a few weeks later, I graduated from Luther College in Iowa and took my board exams to become a Medical Laboratory Scientist. We were on top of the world and felt like we were finally starting our lives together.
There was one problem – I was noticing severe weakness in my arms, hands, jaw, and facial muscles. It started small – I would start slurring my words after talking for multiple minutes, I couldn’t open a jar, and I stopped working out because I was exhausted all of the time. I took my fatigue as a sign of an exhausted college student who just started her career. But weeks went by, and I was sleeping more and more, and I was consistently getting weaker. I pushed off seeing a doctor – I hadn’t gone to even a primary care doctor in years. But Preston and my grandma pushed, so I made an appointment.
After looking up my symptoms, I figured I just had a vitamin deficiency (I didn’t eat the best in college and I went out probably more than I should have), which is exactly what I told my doctor. She agreed that it could be a vitamin deficiency, but it could also be much more serious, and she wanted to send laboratory testing out for an autoimmune disease called Myasthenia gravis. I was reluctant, because I knew I didn’t have the money to pay a huge medical bill, but I agreed. A week later, we were still waiting on results, but I was sleeping 16-18 hours a day, and could barely function when I was awake. My then-fiance was worried and decided to take me into the Emergency Room.
After five days, many blood draws, an MRI, a chest x-ray, a spinal tap, and being seen by many specialists, I was sent home with little answers. We were still waiting on laboratory testing, but my doctors agreed I could wait at home. Two days later, on June 28th, 2017, I got a call from my neurologist that literally changed my whole life. The tests came back very conclusive – I had Myasthenia gravis.
From that point, I was scheduled for weekly occupational therapy and physical therapy appointments and put on many different medications to get my symptoms under control. I took a leave of absence from my new job and focused on my health, spending my days researching treatments, clinical trials, and support groups.
Dealing with my chronic illness has been a BATTLE. I have had a love/hate relationship with my body over the last three years, and I still struggle with it sometimes. I went through the stages of grief as I lost myself – or who I thought I was – and I’m learning to be me again.
However, this story isn’t all bad. Through this process, I have learned how much love I have and how much I want to help others. In early 2019, my husband and I decided to start taking classes to become foster parents. As of June 2020, we will be newly licensed foster parents and will be welcoming children into our homes and hearts very soon.