Chronically Jessica

jessica_eds_pots_rare disease

Jessica Bennett's Story

Alberta Canada

Age: 16-24

A little bit about my journey:

My Diagnosis

hEDS, Hypoglycaemia, Necrotizing Enterocolitis, Rheumatoid Arthritis, Osteoarthritis, Fibromyalgia, Panic Disorder, Anxiety, SBS, and others that are still being diagnosed.

Time to Get Diagnosed

From when I started finally looking into it for myself about 3 years.

Year I was Diagnosed

2018 for my main EDS diagnosis.

Sending Love to

Dr. Scott Rapske

Hospital I'd Recommend

South Health Campus Calgary

This is my story:

My symptoms started really showing up in the last two years of high school. But my doctor at the time just though it was all in my head. So it wasn’t until after I had finished high school and moved out that I really was able to start looking for real answers.

I went through 5 doctors before I found one that would actually listen to me and help me. He’s fabulous. It started with my diagnosis of EDS, Ehlers Danlos Sydrome. This one diagnosis answered so many questions. I finally had a reason for most of my pain and problems. Then from there the specialists (for the most part) started listening to me. In the following years I was able to get my other main diagnoses being Fibro and Hypoglycaemia.

Having an actual team on your side is very nice and makes you feel validated. Having people who will listen to you and help you find the answers you want, and not just say it’s in your head.

I’m still looking for more answer to some other problems I have but I know we will get there. I’m just thankful to be heard.

I found this community about a year ago (Around spring 2019 I believe, I might be wrong) and it has been a life changer for me. Having a community that not only cares about you but also understands what you are going through is amazing. I couldn’t be more grateful for this group of amazing people.

My life is far from perfect and my journey is not over for answers but it is going in the right direction, which I am eternally grateful for.

Let’s play 20 questions:

The song that keeps me going is:
Perfect by Loving Caliber
I never leave home without my:
My go-to feel better movie is: 
Harry Potter
If I was in the hospital, the celebrity I would most love to visit me would be:
Emma Watson
When I need to relax, I:
My heated blanket
My favorite food is:
The quote that keeps me going is:
Laugh every day
When I need a laugh, I:
Play with my pets
Meet my pets (or favorite stuffed animal):
Zeus (Great Dane/Lab Mix) Chi (Shitzu/Pug mix)
My hero is:
When I’m having a down day I binge watch:
My favorite book to get lost in is:
Anything by Danielle Steele
I want to be best friends with:
Sean Mcloughlin (Jacksepticeye)
The thing I’m most proud of:
My home and family
The most wonderfully unexpected thing that has happened to me as a result of this journey is:
Finding this community
The most hilarious thing that has happened to me is:
It really means a lot when someone does this:
Understands when I need help
My favorite social media account to follow is:
This Crazy Life
The advice I would give to myself back at the beginning of this journey would be:
Be positive
Words of encouragement that I’d give to my fellow warriors are
Keep Smiling, live life each day.
Follow my journey:

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