My issues started @ 14 mos of age with a subdural hematoma leaving me blind in my right eye and a klutz my whole life....
A little bit about my journey:
Ehlers Danlos Syndrome, Mast Cell Activation, POTS, Addisons
Time to Get Diagnosed
Year I was Diagnosed
Sending Love to
My amazing family doctor, Dr. Gordillo, who came back from holidays early!
Hospital I'd Recommend
South Health Campus in Calgary, Canada!
This is my story:
I’ve always been a delicate flower, as my family has said. Crying from pain while jumping on the trampoline, breaking dishes while helping mom in the kitchen, and not being able to sit still in church. “She needs a doctor,” people would whisper all day. Then, winter of 2016, my first big injury happened. It was a snowboarding accident that ended with me walking off the hill delicately holding a very broken arm. Bones healed, yet frequent pain and dislocations prompted an amazing surgeon, Dr. D. He’s reconstructed so much on my arm. Then 2018 prompted more health issues… extreme exhaust, which quickly evolved into adrenal issues. Finally we put the finger on the diagnosis we’d been missing… Ehlers Danlos Syndrome! Today I’m recovering from my fourth wrist surgery, and fill my spare time between part-time nanny and cashier, with my four legged pals; horse Adagio and pup Bixby! I also enjoy putting my deep thoughts onto paper, and crafting the time away.
Let’s play 20 questions:
The song that keeps me going is:
I Hope You Dance
I never leave home without my:
credit card 😁 I love online shopping!
My go-to feel better movie is:
I don't watch movies!
If I was in the hospital, the celebrity I would most love to visit me would be:
When I need to relax, I:
make the 40 minutes drive to the barn and hang out with Adagio!
My favorite food is:
The quote that keeps me going is:
the word "courage"
When I need a laugh, I:
play with Bixby!
Meet my pets (or favorite stuffed animal):
Adagio, my horse who's become my physical therapist and biggest inspiration, Bixby my bichon shih-tzu, and Zipper, my hamster!
My hero is:
When I’m having a down day I binge watch:
I don't watch 😉
My favorite book to get lost in is:
there's so many! but I've been loving Charles Mackesy!
I want to be best friends with:
it would have been Jacquie from "Chronically Jacquie!"
The thing I’m most proud of:
I've found there's many different ways to climb a mountain!
The most wonderfully unexpected thing that has happened to me as a result of this journey is:
it's made me who I am, and helped me grow closer to God!
The most hilarious thing that has happened to me is:
when I woke up from a two hour surgery to find out the whole operating room was entertained by stories of Adagio!
It really means a lot when someone does this:
I love little surprises like notes and sentiments!
My favorite social media account to follow is:
you mean I have to pick one?? I'd have to say @chronically.joyful in instagram!
The advice I would give to myself back at the beginning of this journey would be:
Just take it one step at a time! We can't see the whole staircase for a reason!
Words of encouragement that I’d give to my fellow warriors are
Never give up!
Follow my journey:
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