From Patient to Scientist

deatra bear EDS photo

Deatra Bear's Story


Age: 16-24

A little bit about my journey:

My Diagnosis

Ehlers Danlos Syndrome

Time to Get Diagnosed

2 years

Year I was Diagnosed


Sending Love to

Hospital I'd Recommend

This is my story:

When I was little I always seemed to have problems with my joints, I would be in and out of PT all throughout my high school years. We knew I was hyper mobile because my shoulder would always dislocate. My doctors really didn’t think anything of it, and my life was pretty normal; other than the occasional aches and pains. It wasn’t until I was 17 that I started to develop more troublesome symptoms; fainting, stomach problems, rashes, etc. If you asked me back then what I thought was wrong, I would have told you that I thought I had a bad case of the flu. I went to a family medicine doctor and he did some blood work, from there my diagnoses just snow balled. POTS, Gastroparesis, Lupus, Nutcracker syndrome, etc. I knew growing up that I wanted to go into medicine, I thought maybe nursing. I did my pre requisites for nursing, and of course took the TEAS/CASPER. During one of my summers in nursing I decided to apply for a research internship, I fell in love with the research lab environment. I decided I was going to switch my major to Chemistry, I am now hoping that one day I can help be a stepping stone towards a treatment or even a cure for my illnesses.

Let’s play 20 questions:

The song that keeps me going is:
Grateful by Rita Ora
I never leave home without my:
My go-to feel better movie is: 
Soul by Pixar or any Harry Potter movie
If I was in the hospital, the celebrity I would most love to visit me would be:
When I need to relax, I:
Take a bath
My favorite food is:
The quote that keeps me going is:
Falling down is a part of life, getting back up is living.
When I need a laugh, I:
Meet my pets (or favorite stuffed animal):
My hero is:
When I’m having a down day I binge watch:
Vampire Diaries
My favorite book to get lost in is:
Harry Potter and The Half Blood Prince
I want to be best friends with:
The thing I’m most proud of:
The most wonderfully unexpected thing that has happened to me as a result of this journey is:
Making care packages for others with chronic illness
The most hilarious thing that has happened to me is:
It really means a lot when someone does this:
My favorite social media account to follow is:
The advice I would give to myself back at the beginning of this journey would be:
Words of encouragement that I’d give to my fellow warriors are
Follow my journey:

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