I was diagnosed with CMT and scoliosis when I was 16, I’m now 52. When I was first diagnosed my doctors told me that I would be in a wheelchair by the time I was 21. I decided right then and there that was not going to be the case. Spoiler alert: I am still wheelchair-free although I do wear leg braces. In 2002 I went to a CMT research hospital. After conducting all of the tests, including genetic testing to tell me I had CMT1A, the doctors said to me – “we honestly have no idea how you are still walking, you shouldn’t be able to walk.” But here I am.
As a professional woman I have always dressed to project an image. of style and confidence. Maintaining a wardrobe that can accommodate leg braces has been challenging. I recently started reaching out and helping other women both incorporate their braces and camouflage them to build the outfits that can give them confidence and make them feel beautiful too. Just because I have CMT doesn’t mean I don’t want to look beautiful and feel beautiful. I am working on expanding my presence to reach even more women. Feel free to check out my FB page @MyCMTLife and my Instagram at My_CMT_Life. I’d love to see you.