It takes one

nicole_wicklund_gangliopathy

Nicole Wicklund's Story

Michigan

Age: 25-36

A little bit about my journey:

My Diagnosis

Autoimmune autonomic Ganglionopathy, gastroparesis, asthma, sleep apnea, anxiety and migraines

Time to Get Diagnosed

For the autonomic Ganglionopathy it took 7 years

Year I was Diagnosed

2020. But have had migraines since 2000

Sending Love to

Dr stino

Hospital I'd Recommend

University of Michigan

This is my story:

I have had migraines since I was 6 after a concussion. Af the age of 19 I started having right sided tremors, weakness and daily migrines. As time went on everthing got worse I started to pass out, blood pressure low and heart rate high. Ever time I ate I would thorw up or get pain. I was in the hospital for 14 days for malnutrition a nurse practitioner took time and ordered a neuro consult. I was referred to Dr Stino who diagnosed me with autoimmune autonomic Ganglionopathy

 

Let’s play 20 questions:

The song that keeps me going is:
You will be found from dear Evan hansen
I never leave home without my:
My kindle
My go-to feel better movie is: 
The ugly dachshund
If I was in the hospital, the celebrity I would most love to visit me would be:
Darren criss
When I need to relax, I:
Listen to show tunes
My favorite food is:
The quote that keeps me going is:
Be good to people because no one likes an asshole
When I need a laugh, I:
I watch musicals
Meet my pets (or favorite stuffed animal):
I have a 4 month only great dane named atlas
My hero is:
My aunt she is very strong and has been though a lot
When I’m having a down day I binge watch:
Zoe's extrodany playlist
My favorite book to get lost in is:
Harry potter
I want to be best friends with:
Darren criss
The thing I’m most proud of:
My humor and the ability to look on the bright side
The most wonderfully unexpected thing that has happened to me as a result of this journey is:
I got married in 3 days. After getting engaged Becouse it felt like the right time and wanted to do it on a good day
The most hilarious thing that has happened to me is:
It really means a lot when someone does this:
Listen
My favorite social media account to follow is:
The advice I would give to myself back at the beginning of this journey would be:
To not give up if you feel something is wrong and no one believes keep going. There is always one doctor who will change your life.
Words of encouragement that I’d give to my fellow warriors are
There are good moments even with the bad days
Follow my journey:

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