My fight to keep going

Elizabeth's Story


Age: 13-15

A little bit about my journey:

My Diagnosis

Pots, Eds, hypotonia, MCAS, rfid, eee, sfn, anxiety, depression, apraxia,dyslexia.

Time to Get Diagnosed

3 years

Year I was Diagnosed


Sending Love to

Blair Gribb

Hospital I'd Recommend

Children hospital of Atlanta

This is my story:

Hi my name is Elizabeth and I struggle with chronic illnesses.
One of my hardest things with my illnesses are that they are invisible. In school I have to use the elevator due the my illnesses sometimes I will take the stairs. Kids will always say you’re faking it, you’re fine, get up.
I can’t participate in physical education but I can do recess. Always certain teachers carry stress one of my past teachers kept confronting me about my illnesses when I was in 3rd grade and I was new to that school at that time. My teacher broke the law with me she said if you can’t do pe your not allowed to do recess she made me sit out at recess and watch everyone else play. It is against the law a kid at least has to do recess or pe. At stores I have to ride the electric carts because I chase walk in stores I hate using them because I get all these stares and look and whippers about me. Once a employee at Publix came up to me and said you have to be 18 or older to ride one of those I said I’m handicapped. It sucks to have invisible illnesses and people just judge you and you can’t say anything to them.

Let’s play 20 questions:

The song that keeps me going is:
Fights song
I never leave home without my:
My go-to feel better movie is: 
If I was in the hospital, the celebrity I would most love to visit me would be:
Izzy kornblau
When I need to relax, I:
Watch nextfkiz or YouTube
My favorite food is:
Fair life chocolate milk
The quote that keeps me going is:
When I need a laugh, I:
I go on the web and search up funny illnesses memes
Meet my pets (or favorite stuffed animal):
My hero is:
When I’m having a down day I binge watch:
My favorite book to get lost in is:
Fish in a tres
I want to be best friends with:
Izzy kornblau
The thing I’m most proud of:
When I got into 7th grade honors math when I was going into 6th grade
The most wonderfully unexpected thing that has happened to me as a result of this journey is:
My school nurse has pots and understands what happens to me
The most hilarious thing that has happened to me is:
It really means a lot when someone does this:
Asks me if I’m okay and I say im fine and someone says are you really ok
My favorite social media account to follow is:
Izzy kornblau on yourube
The advice I would give to myself back at the beginning of this journey would be:
Don’t care what other people think
Words of encouragement that I’d give to my fellow warriors are
Keep fight life is worth living
Follow my journey: Izzy kornblau on youtube

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