My journey

Erin's Story

Myrtle Beach SC USA

Age: 37-45

A little bit about my journey:

My Diagnosis

Fibromyalgia/CRPS-II/Chronic pain syndrome/Hyperlipidemia/Hypothyroidism/Allergies (meds&household)/chronic fatigue syndrome/moderate clinical depression/generalized anxiety disorder/SI joint deterioration/OA(almost every joint)/spinal stenosis/chronic greater trochanteric bursitis (rt hip)/blindness in my rt eye/PMDD

Time to Get Diagnosed

Most of them 10+years

Year I was Diagnosed

Last diagnosis 2020

Sending Love to

Dr gluzberg(pcp)and Dr kline & rita his NP (pain mgt group)

Hospital I'd Recommend

Tidelands waccamaw and Grand strand medical

This is my story:

My issues started @ 14 mos of age with a subdural hematoma leaving me blind in my right eye and a klutz my whole life. Fast forward to 17/18 and depression and anxiety came into play. Fast forward again to 2011 and I had to have a hemilaminectomy on my l5/s1 disc. My fathers side of the family has a hereditary condition where too much scar tissue forms(my brother and I both have it). Fast forward 12 mos and I had to have a SCS unit put in to help control the pain. Fast forward 5 yrs I have been in 2 car accidents, have further damage to my cervical spine, and need to have surgery to have my SCS replaced because my unit has hit its life span. I worked as a key holder/manager in groc retail and as a CPht. from the beginning and before this journey. Well June 1st 2017 was my last day of work as I had the replacement surgery coming up. I never recovered enough to return to work. I am currently waiting for another SSDI hearing in June. My current care team has ordered a new round of testing and continuing meds plus maybe some specialty therapy. While I have been dealing with this I have learned a lot about empathy and how to take it 1 day @ a time. It has been a very hard long journey, but its my life. I AM A WARRIOR

Let’s play 20 questions:

The song that keeps me going is:
Fighter by Keith Urban and Carrie Underwood
I never leave home without my:
Purse...all my medical info and my remote for my scs are in there
My go-to feel better movie is: 
The Little Mermaid
If I was in the hospital, the celebrity I would most love to visit me would be:
Carrie Underwood
When I need to relax, I:
Sit on the heating pad in my recliner
My favorite food is:
Ramen noodles
The quote that keeps me going is:
"Suck it up buttercup"
When I need a laugh, I:
Txt my bestie
Meet my pets (or favorite stuffed animal):
Honey a golden retriever mix (We lost her approx a yr ago, but she is always with me)
My hero is:
The members of the CWC
When I’m having a down day I binge watch:
The Ncis series(all 3) or the Chicago series(all 3)
My favorite book to get lost in is:
Any historical romance
I want to be best friends with:
Jamie Arnold(a local news person)
The thing I’m most proud of:
Still being able to walk even if it is with assistance
The most wonderfully unexpected thing that has happened to me as a result of this journey is:
The CWC and my current team of drs
The most hilarious thing that has happened to me is:
Something new everyday, whether it is tripping over my own feet or forgetting something in 30 seconds. I have to laugh @ myself
It really means a lot when someone does this:
Acknowledges that I have pain constantly even tho you may not be able to see it
My favorite social media account to follow is:
CWC on the Mighty networks
The advice I would give to myself back at the beginning of this journey would be:
Dont push yourself to the limit
Words of encouragement that I’d give to my fellow warriors are
Keep making the best of everyday
Follow my journey:

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