My story

young girl with glasses, freckles and bear ears on

Faith's Story

Upstate New York

Age: 16-24

A little bit about my journey:

My Diagnosis

hEDS, Svt, some undiagnosed

Time to Get Diagnosed

4 years

Year I was Diagnosed


Sending Love to

Dr Sauberman

Hospital I'd Recommend

Golisanos children's hospital

This is my story:

As a child I knew I was different. I used to do the normal “party tricks” in gym class and such and be able to creep out my friends. Around the age of 13 my problems started getting bad. Constant joint pain and instability. I brushed it off thinking it was due to me being too rough with my brothers. Until while standing in church and singing and kind of bouncing myself to the beat, my knee just randomly dislocated and I fell to the ground in pain and started crying. My dad came and put my knee back into place and started suspecting hEDS since my grandpa (his dad) had it and i was showing symptoms. Things my health were not stable but due to family issues things were brushed under the rug and when I moved into my dads i went into a depression. And went through my mental health journey. About 3years now I started having gi issues onto of joint pain and chest pain and palpitation. I would vomit the majority of the food I ate and since I was overweight when this started doctors didnt seemed concerned and still dont at times. I’ve have had many test and cant pinpoint the cause of my gi issues but have for my other issues. My diagnosed mental health issues have been blamed for my issues which make me a bit angry. And make doctors feel I’m faking. I am still hopeful though and know I’m a warrior.

Let’s play 20 questions:

The song that keeps me going is:
Cut my lip by twenty one pilots
I never leave home without my:
My go-to feel better movie is: 
Harry potter and the prisoner of azkaban
If I was in the hospital, the celebrity I would most love to visit me would be:
Josh dun
When I need to relax, I:
Listen to music
My favorite food is:
The quote that keeps me going is:
"The sun will rise and we will try again"
When I need a laugh, I:
Mess around with my siblings
Meet my pets (or favorite stuffed animal):
Snickers my calico cat and hucklebee my black cat
My hero is:
My dad
When I’m having a down day I binge watch:
Random history and science videos
My favorite book to get lost in is:
Harry potter
I want to be best friends with:
Safiya nygarrd
The thing I’m most proud of:
Getting to a better headspace
The most wonderfully unexpected thing that has happened to me as a result of this journey is:
An appreciation for small things
The most hilarious thing that has happened to me is:
Accidentally starting a food fight at home
It really means a lot when someone does this:
Helps me when I didnt ask
My favorite social media account to follow is:
Tyler Joseph
The advice I would give to myself back at the beginning of this journey would be:
Stay strong and advocate
Words of encouragement that I’d give to my fellow warriors are
You are not alone
Follow my journey:

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