Recognizing Victories

jessie_seabolt_chronic illness warrior

Jessie Rose's Story

Tennessee USA

Age: 25-36

A little bit about my journey:

My Diagnosis

Multiple Chronic Illnesses

Time to Get Diagnosed

10+ years

Year I was Diagnosed

2009

Sending Love to

Hospital I'd Recommend

This is my story:

I am a wife to a loving husband and a mother of two amazing teenagers. I didn’t reach that story easily. My son was born in 2003 at 32 weeks gestation due to Toxemia and HELLP Syndrome. He spent 22 days in NICU before coming home at 4 lbs. I was diagnosed with hypertension shortly after he was born. Three years later when I became pregnant with my daughter, I was made to take blood thinners to ensure a safe and full-term pregnancy. During my pregnancy they discovered I have Factor V Leiden deficiency and MTHFR. Both of these are a danger to a pregnant woman, and my entire pregnancy was a battle of taking it one day at a time. Fast forward 4 years and I discovered that I also suffer from a chronic skin condition called Hidradenitis Suppurativa. This battle was like nothing I had ever faced, and continues to be a daily struggle for me. I have managed to discover my main triggers and do my best to avoid them. This seems to keep things at a decent, at least tolerable, level for the most part. In the last 2 years I have suffered episodes of Supraventricular Tachycardia and was diagnosed with Endometriosis and Ocular Migraines. I have spent the better part of the last year having every possible test ran with multiple MRIs to compare to try and find the cause of my debilitating vertigo and dizzy spells. They have settled on Ocular migraines and I take medicine to keep everything leveled out. Between the medicine to keep the SVT controlled and the medicine to keep the Migraines controlled, I feel almost normal again. Sitting down to write this is the first time in almost 8 months I have used my laptop. Every victory deserves to be recognized. I often wonder why my life went the direction that it did, having my kids at 17 and 20. But deep down I think that it took the shape it did because my future was going to be so complicated. The things that I have been through up to this point have shaped who I am today. They continue to make me look at things through a different set of lenses and give me more appreciation for the good days, even the “not that bad” days.

Let’s play 20 questions:

The song that keeps me going is:
Fight Song - Rachel Platten
I never leave home without my:
current knitting project
My go-to feel better movie is: 
P.S. I Love You
If I was in the hospital, the celebrity I would most love to visit me would be:
Leslie Allen Jordan
When I need to relax, I:
work on my knitting with my dog sitting next to me
My favorite food is:
chocolate cake
The quote that keeps me going is:
If it was meant to be, It will be.
When I need a laugh, I:
watch AFV with my daughter
Meet my pets (or favorite stuffed animal):
Scout is a 6 yr old chihuahua mix and Wolfe is a 6 year old hound mix
My hero is:
my mother, she has been my rock.
When I’m having a down day I binge watch:
Star Trek:TNG with my hubby.
My favorite book to get lost in is:
any of the Outlander series
I want to be best friends with:
Leslie Allen Jordan, I can't help it, he is just tooo precious!
The thing I’m most proud of:
graduating college in 2019 on the President's List.
The most wonderfully unexpected thing that has happened to me as a result of this journey is:
meeting others that live life like I do, one day at a time.
The most hilarious thing that has happened to me is:
It really means a lot when someone does this:
makes me coffee
My favorite social media account to follow is:
The advice I would give to myself back at the beginning of this journey would be:
Take it easy, breathe, don't let this define you.
Words of encouragement that I’d give to my fellow warriors are
Live each day to the absolute fullest, cliche I know, but you truly never know when your time will end. Don't be so hard on yourself, eat the cake, watch the show, laugh out loud, love your people. It makes life worth living.
Follow my journey:

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