The Journey is Half the Fun


Megan C.'s Story

Texas, USA

Age: 25-36

A little bit about my journey:

My Diagnosis

hEDS, Endometriosis, POTS, Rheumatoid Arthritis, Asthma, TOS

Time to Get Diagnosed

8 years

Year I was Diagnosed


Sending Love to

Hospital I'd Recommend

This is my story:

I have had chronic pain since my early teen years, but my symptoms did not get debilitating until my first year of college. At the time, my specialists dismissed my symptoms, which started my journey towards a diagnosis.

During college, my symptoms continued to escalate. I struggled to keep down food, and ended up severely underweight. After a late night ER trip, a CT discovered several masses in my abdomen. Exploratory surgery lead to my first Chronic Illness Diagnosis: Endometriosis. The treatment for my Stage IV Endometriosis was a drug called Lupron, which thrusts the body into artificial menopause. Unfortunately, the intensity of this treatment set off a set of symptoms that took years to get fully diagnosed. I was diagnosed with RA in 2018, POTS in 2019, and hEDS in 2020, among others.

I was so happy to have a name for the symptoms that had been plaguing me for years!

Flashing forward to now, I know that I still have a long way to go on this journey, but I have a team of doctors who listen to me, and a plan to keep myself as healthy as I can be!

I am very thankful to the friends I have made on the collective, it is amazing to know that you will have people who understand your struggles to walk with you through the good times and the bad!

Let’s play 20 questions:

The song that keeps me going is:
Anything by Dodie or A Great Big World
I never leave home without my:
My go-to feel better movie is: 
Hitchhiker's Guide to the Galaxy, The Princess Bride, of LOTR
If I was in the hospital, the celebrity I would most love to visit me would be:
When I need to relax, I:
Listen to music
My favorite food is:
The quote that keeps me going is:
When I need a laugh, I:
Listen to Podcasts!
Meet my pets (or favorite stuffed animal):
I have two Chinchillas named Gandalf and Merlin
My hero is:
When I’m having a down day I binge watch:
My favorite book to get lost in is:
The Giver
I want to be best friends with:
The Radiolab Crew
The thing I’m most proud of:
Learning to love my body
The most wonderfully unexpected thing that has happened to me as a result of this journey is:
The most hilarious thing that has happened to me is:
A light pole fell on my car one time...
It really means a lot when someone does this:
Writes me a letter!
My favorite social media account to follow is:
The advice I would give to myself back at the beginning of this journey would be:
Find people who truly GET you!
Words of encouragement that I’d give to my fellow warriors are
You are awesome! Take everything one step at a time!
Follow my journey:

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