I have had chronic pain since my early teen years, but my symptoms did not get debilitating until my first year of college. At the time, my specialists dismissed my symptoms, which started my journey towards a diagnosis.
During college, my symptoms continued to escalate. I struggled to keep down food, and ended up severely underweight. After a late night ER trip, a CT discovered several masses in my abdomen. Exploratory surgery lead to my first Chronic Illness Diagnosis: Endometriosis. The treatment for my Stage IV Endometriosis was a drug called Lupron, which thrusts the body into artificial menopause. Unfortunately, the intensity of this treatment set off a set of symptoms that took years to get fully diagnosed. I was diagnosed with RA in 2018, POTS in 2019, and hEDS in 2020, among others.
I was so happy to have a name for the symptoms that had been plaguing me for years!
Flashing forward to now, I know that I still have a long way to go on this journey, but I have a team of doctors who listen to me, and a plan to keep myself as healthy as I can be!
I am very thankful to the friends I have made on the collective, it is amazing to know that you will have people who understand your struggles to walk with you through the good times and the bad!