You MAY have Lupus.

Dianne Perez_RA warrior

Dianne's Story

USA

Age: 37-45

A little bit about my journey:

My Diagnosis

Lupus, APS (antiphospholipid syndrome,) anemia and rheumatoid arthritis.

Time to Get Diagnosed

20 years

Year I was Diagnosed

2014

Sending Love to

Dr. Patel Oncologist

Hospital I'd Recommend

BSA in Texas

This is my story:

My name is Dianne originally from Boston, MA, living in Texas.
Growing up I had seizures, hives, sun sensitivity and lots of headaches. I don’t have a lot of memories of my childhood except for being in the hospital long term.
It wasn’t until I was pregnant at 20 did I learn I had some other issues. I went from doctor to doctor, all told me “You may have lupus. But you definitely have antiphospholipid syndrome.” From that day on it was considered high risk for me to be pregnant. I was put on blood thinners and watched closely. Shortly after my son was born I developed a blood clot. It’s been over 20 years of weekly or monthly blood draws. And different doctors all making sure I am staying in a good range. Three children, two blood clots and many hospitalizations later I am finally told “You have lupus,” after more tests. It felt good to have a reason for all the worries, brain fog & weird pains. After some chemotherapy and daily medication I finally started to feel more normal again. Some days I wake up with new symptoms and still struggle with brain fog and migraines. My new normal isn’t the greatest but I do the best I can with what I’ve been given.

Let’s play 20 questions:

The song that keeps me going is:
Any upbeat 80’s songs.
I never leave home without my:
Keys, phone, water bottle and purse.
My go-to feel better movie is: 
Any John Hughes movie like Sixteen, Candles, The Breakfast Club and Pretty in Pink.
If I was in the hospital, the celebrity I would most love to visit me would be:
Keanu Reeves
When I need to relax, I:
Read a book, listen to music or just go to my bed.
My favorite food is:
Chinese food.
The quote that keeps me going is:
I am happy, I am healthy, I am loved.
When I need a laugh, I:
Watch sitcoms.
Meet my pets (or favorite stuffed animal):
I have 6 cats. Sully is my favorite.
My hero is:
My sisters and my husband.
When I’m having a down day I binge watch:
80’s movies
My favorite book to get lost in is:
Usually a Stephen King book.
I want to be best friends with:
The thing I’m most proud of:
My strength.
The most wonderfully unexpected thing that has happened to me as a result of this journey is:
The most hilarious thing that has happened to me is:
It really means a lot when someone does this:
My favorite social media account to follow is:
The advice I would give to myself back at the beginning of this journey would be:
Ask more questions, be persistent.
Words of encouragement that I’d give to my fellow warriors are
You are not alone.
Follow my journey:

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